I don't usually tell people in real life that I have lupus,mainly because I don't want sympathy and other times its because i am avoiding insensitive comments.Insensitive comments are part of life, but I find the ones where people tell me what they expect me to do to be the most frustrating.
Here are a few things that have actually been said to me,and my replies.
How can you be a doctor? Shouldn't you have let someone more able take your place at medical school after all you can't offer that much?
My medical school is aware that I have SLE, they believe in me and they are very supportive. Most of the time I am healthy and fit,but occasionally I do take time off. I realise that I may contribute less working days over my life, but I have lots to offer.Maybe having lupus means I will be able to show much more empathy to my patients
Oh, you have lupus? I know someone that died at 30(insert other really young age here) are ready to die?
Yes, i do have lupus.I am 20,I do not intend to die at any point in the near future,besides treatments have improved, and some people are more severely affected than others.
I am not delusional,and I do not think I am immortal,but I am not at deaths door.Please realise that I am probably more aware of my prognosis than you are.
Maybe they will understand, but having lupus is not an excuse to be lazy.I will try my best in everything I do. So far ,i have never handed in a piece of uni work in late,and I don't intend to unless it is absolutely necessary. I can compete with non lupies, and I will.
Being ill must be really tough, you must hate talking about it,it must be so hard for you!
I neither like nor dislike talking about my illness.I don't mind answering questions, I would rather answer questions than have people tip-toe-ing around me unnecessarily.I want to raise awareness of invisible illnesses ,if talking about myself helps, then I don't mind doing it.

Please don't put me in a box. Everyone with an invisible illness is different, get to know them individually,before you decide what is expected from them
Sometimes I will exceed expectations, and thats great.
Other times I will fail to meet them,and whilst I am sorry.I have come to realise that I can only try my best,but i am not a super hero,I have limitations and I can not be perfect.
I CHOOSE TO TRY MY BEST AT EVERYTHING.